Navigating the Holidays with Family Members Living with Dementia

The holidays are a time of joy, togetherness, and tradition. However, for families with loved ones living with dementia, this season can bring unique challenges. Balancing festive celebrations with the needs of someone who may experience confusion, anxiety, or memory loss requires patience, understanding, and thoughtful planning. Here are practical tips for creating a supportive and meaningful holiday experience for everyone involved.

1. Adjust Expectations

The holidays don’t need to be picture-perfect to be meaningful. Recognize that your loved one may not be able to participate as they once did. Simplify plans to prioritize their comfort and well-being. For example, instead of hosting a large family gathering, consider smaller, quieter gatherings that are easier for them to navigate.

Tip: Focus on moments of connection rather than perfection. A calm conversation or sharing a favorite holiday song may mean more than elaborate traditions.

2. Plan for Comfort and Routine

Dementia thrives on routine, and disruptions can lead to increased confusion or agitation. Try to maintain regular schedules for meals, rest, and activities. If you’re visiting others, bring familiar items such as a favorite blanket, photo album, or holiday decoration to create a sense of familiarity.

Tip: Schedule celebrations earlier in the day, as individuals with dementia often experience “sundowning,” when symptoms can worsen in the late afternoon or evening.

3. Involve Them in Meaningful Activities

Engaging your loved one in simple, sensory-friendly activities can foster a sense of purpose and inclusion. Some ideas include:

• Stringing popcorn or cranberries for decorations.

• Listening to holiday music from their era.

• Looking through old photo albums or watching classic holiday films.

• Decorating cookies with easy, manageable tasks.

Tip: Focus on activities they can enjoy without feeling overwhelmed or frustrated.

4. Communicate with Family Members

Prepare your family and friends by explaining your loved one’s condition and needs. Encourage visitors to be patient, avoid correcting them if they confuse names or dates, and focus on engaging positively.

Tip: Share strategies for meaningful interaction, such as asking open-ended questions or reminiscing about the past, which may be more accessible than discussing recent events.

5. Watch for Signs of Overstimulation

Holidays often come with noise, lights, and bustling activity—all of which can be overwhelming for someone with dementia. Pay attention to signs of stress, such as agitation, withdrawal, or increased confusion.

Tip: Create a quiet, calming space where your loved one can retreat if needed.

6. Care for Yourself Too

Supporting a loved one with dementia can be emotionally and physically taxing, especially during the holidays. Don’t hesitate to seek help from other family members or professional caregivers. Taking time for self-care ensures you can fully engage with and support your loved one.

Tip: Set realistic boundaries, and don’t be afraid to say no to additional commitments.

Conclusion

The holidays may look different when caring for a loved one with dementia, but they can still be filled with love, warmth, and connection. By prioritizing their comfort, adjusting expectations, and focusing on meaningful moments, you can create a season of joy and peace for everyone involved.

Through patience and understanding, these adaptations not only honor your loved one’s journey but also preserve the true spirit of the holidays: family, compassion, and togetherness.

Written by Kobe Eichelberger